Patient Advocacy Guide

Why is patient advocacy necessary?


Nothing is as strong as the real patients’ voice when priorities are being set in healthcare. With patient involvement increasingly recognised as a key component in the redesign of healthcare, the timing has never been better for patient organisations to make the voice of women with gynaecological cancers, their loved ones and those at risk of developing the disease heard among health decision-makers, and those whose cooperation you might need to influence them.


Since healthcare systems, government screening and prevention programmes as well as access to therapies are increasingly under scrutiny in terms of value for money in many countries across Europe, there has never been a time when health policy-makers need more convincing arguments of the patient’s true needs articulated through strong and compelling arguments to help them take the right decisions.



How to use this advocacy guide?


This guide is divided into ten sections, which explain step by step how to plan, prepare, conduct and monitor your advocacy efforts. It is important to remember that one size does not fit all, so the guidance and
tips provided should be adapted to your national circumstances, organisational structure and available resources.


If you are creating an advocacy plan for the first time, we would encourage you to go through the manual step by step. If you are, however, an experienced advocate interested in some parts of the guide you should be able to navigate through it easily to focus on those parts you need most without necessarily reading the whole document.


Indeed, for those of you already engaged in advocacy, the guide can help you strengthen your plans. It does not mean that you need to start from scratch. On the contrary, you should build on your work to date to see whether your efforts can be streamlined and enhanced based on the guide.


We hope you find this guide useful and wish you good luck with your advocacy efforts!


Click here for the Advocacy Guide:

Advocacy Guide.pdf