patient_seminar

Patient Seminar 2015

ESGO’s European Network of Gynaecological Cancer Advocacy Groups - ENGAGe was delighted to organise another successful Patient Seminar during the 19th ESGO Congress in Nice, France under the theme 'magnifying the patient voice'.

 

The 3rd Patient Seminar again was aimed at leaders of patient groups with patient advocacy a key topic again this year.  Advocacy continues to be a key driver in changing the public health landscape and the patient voice plays an increasingly important role in providing key insights about disease, treatment and quality of life for researchers and policy makers when priorities need to be set.

 

 

The seminar was co-chaired by John Green, ENGAGe Chair and Isabel Mortara, ENGAGe Coordinator who extended a warm welcome to all congress participants and invited everyone to join them for a day of learning, networking & making new acquaintances.

 

The 2015 Patient Seminar boasted another exciting program with notable speakers and relevant for gynae cancer advocacy patient groups, cancer leagues and other groups with an interest in gynae cancer. The morning program focused on trends & hot topics in research, the status of prevention & screening in Europe and the latest in innovations & treatment options.

 

Our best practices marketplace sessions in the afternoon, included social media sessions for both beginners & advanced users. Unique to the seminar was the special session about Cancer in the workplace, which raised the question if employment discrimination laws protected employees with cancer. A patient’s first-hand experience was heard including what the current European landscape looked like concerning this issue. Last but not least, the final session will focus on ‘Advocacy in Action’ with a diverse panel of speakers addressing how advocacy influences health policy in Europe.

2015 Patient Seminar Documentation & Photos

Take a look at the 2015 Patient Seminar Program and browse through the photos.

 

 

2015 Patient Seminar program

2015 Patient Seminar report

2015 Patient Seminar survey 

 

 

Professor Martin Widschwendter (University College London, UK) was invited to join us in Nice, France for the 2015 Patient Seminar and speak during Session 3 Innovation & Treatment presenting the FP7 EpiFemCare initiative.  Regretfully he was unable to join in the end, however, he has kindly allowed his presentation to be shared on our website including the the handout 'Epigenetics in Action'.

Presentation

Handout

Group photo - 2015 Patient Seminar

Trends in gynaecological cancer in Europe - John Butler

Ovarian cancer – UKCTOCS study:

the outcomes - Usha Menon

Physical activity & cancer risk - Helena Rundqvist

Isabel Mortara - Opening the 2015 Patient Seminar

Hot topics in research - Helga Salvesen

Networking during coffee breaks

ervical cancer - today and tomorrow - Vesna Kesic

Management of women with a genetic predisposition - Jan C. Oosterwijk

Utility of a screening program of

high risk groups - Ranjit Manchanda

Surgery: when, why and how? Jalid Sehouli

 

New advances in radiation oncology for gynaecologic cancer - Remi Nout

Improving the treatment of rare gynaecological cancers - Isabelle Ray Coquard

 

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