Empowering Patients: The ENGAGe Clinical Trials Project

The ENGAGe Clinical Trials Project, in collaboration with ENGOT, empowers patients across 10 European countries by educating them to provide valuable insights into clinical trials. This initiative focuses on gynecological cancers, including cervical, endometrial, ovarian, and rare cancers.

Since its inception, the project has hosted nine webinars, developed two comprehensive study books, and offered participants the chance to engage in ESGO conferences. A certification test based on the webinars and study books has been introduced, with many participants successfully passing.

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PURPOSE OF THE PROJECT

The project aims to educate gynecological cancer patients, empowering them to actively provide a patient perspective to the design and development of clinical trials. By sharing their unique perspectives, patients can also support surveys, consensus statements, co-author articles, and review grants.

Through this initiative, we create a vital connection between patients and researchers, enabling meaningful collaboration in the research process. Being part of this knowledgeable community provides patients with a support network and the opportunity to make a lasting impact on global health advancements, ensuring that clinical trials truly reflect diverse patient experiences and needs.

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CURRENT DEVELOPMENTS: GCA ENGOT Meeting

In November, 12 members of the Clinical Trials Group will attend the GCA ENGOT meeting in Italy to deepen their understanding of clinical trials and the entire trial process and topics such as initiating clinical trials, the significance of statistical analysis, and how to transition from concept to implementation. Part of the meeting will focus on patient involvement—exploring ways to enhance patient engagement and examining how clinical trials are conducted across different countries. Attendees will also have the opportunity to discuss upcoming initiatives and shape the future direction of the CT project.

DO NOT HESITATE AND JOIN US

If you are interested in the project, please, do not hesitate to contact ENGAGe office at engage@esgo.org . We will be happy to have you!

The Study books are available for ENGAGe participants of the Clinical Trials project however if you are interested in getting the basic information about clinical trials, don´t hesitate to consult our Clinical Trials brochure  in English or in different language translations.

Study book 1 and Study book 2.

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