ENGAGe Patients Committee (EPC)
ENGAGe set up patient’s committees to have a better focus on different gynaecological diseases and more possibilities in prevention and care in Europe. Each committee member is a representative of the ENGAGe member.
There are four committees:
- Cervical Cancer Patient Committee: Icó Tóth, Kim Hulscher, Denisa Laubrová
- Ovarian Cancer Patient Committee: Manuela Bignami, Birthe Lemley, Marjo Sorsa, Eka Sanikidze
- Endometrial Cancer Patient Committee: Maria Papageorgiou
- Rare Cancer Patient Committee: Eva-Maria Strömsholm, Konstantina Toli, Ien Fransen, Gabi Bezjak
There are 3-4 members in each EPC. ENGAGe involve them in projects related to their disease. Their tasks are:
- To focus on the disease
- To View/review/co-write the leaflets or brochures, update the existing ones
- To represent ENGAGe in conferences, then prepare the summary from the event - based on ENGAGe Executive Group request and approval
- To help encouraging other members to translate materials and to cooperate on diverse ENGAGe projects
- To collect the best practices, good campaigns related to the disease from ENGAGe members
- To provide their opinion about the projects related to their disease when asked by ENGAGe Executive Group
- To report about the EPC activities to ENGAGe Executive Group two times a year
- To organise and participate in TC every 3 months within the EPC
- To help in organising/taking part in the Patient Focus Group project
- To collect countries ́ data related to their disease
- To help finding more interested NGOs in Europe
The position of EPC is as follows:
If representative of ENGAGe member would like to join EPC, please, contact us on engage@esgo.org.