The presentations of the 2022 Patient Advocacy Seminar which was held in Berlin from October 28 by October 30, 2022
Friday, October 28, 2022
Oncogynaecology in war: stories of invincible Ukrainians by Margaryta Lyzogub (UA)
Workshop part 1: Aspects of healing - the rediscovery of creativity by Adak Pirmorady (DE), Susanne Diehm (DE):
Saturday, October 29, 2022
Patients involved in organizations - why it is important? By Eva-Maria Strömsholm (FI)
Poster presentations
| No. | Association | Country | Presents | Title |
| 1. | ACTO | Italy | Valentina Nunziella Lombardo | Quality of life in southern Italian women with gynecological cancer |
| 2. | ASSOCIATION OF CANCER PATIENTS IN FINLAND | Finland | Emma Andersson | Experiences on the Cancer & Work project in Finland: A multi-disciplinary approach to support a timely return to working life for cancer survivors |
| 3. | Birthe Lemley | Denmark | Birthe Lemley | Clinical Trials Project – a collaboration between ESGO ENGAGe and ENGOT to get the patient perspective into clinical trials |
| 4. | GYNECOLOGICAL CANCER GERMANY | Germany | Andrea Krull | Get us to know |
| 5. | ESPERANZA | Belgium | Sonia Rademaekers | 4 initiatives by Esperanza in Flanders to support patients with gynaecological cancer |
| 6. | GPU | Georgia | Eka Sanikidze | Vaccination of girls under 18 in Georgia - achievements and challenges |
| 7. | GYNCA'S | Belgium | Anne De Middelaer | Comfort during cancer |
| 8. | WOMEN'S CANCER ASSOCIATION | Israel | Vania Ben Hur Peer | From a Small Group, to a Large and Warm Virtual Community, to a Broad National Activity |
| 9. | WOMEN'S CANCER ASSOCIATION | Israel | Vania Ben Hur Peer | Expanding Social Responsibility Related to HPV Vaccines in Israel |
| 10. | ISGOPPI | Ireland | Yvonne O'Meara | The key to successfully developing an online platform for those impacted by gynaecological cancer and or a genetic mutation; early public and patient involvement and engagement |
| 11. | LOTO | Italy | Manuela Bignami | The digital health revolution in the care pathways of ovarian cancer patients |
| 12. | MALLOW FLOWER FOUNDATION | Hungary | Krisztina Sallai | European Cervical Cancer Prevention Week’s “Pearl of my Life” Campaign |
| 13. | OLIJF | The Netherlands | Arlette van der Kolk | Sexual health and gynecological cancer – out of the box and in the open! |
| 14. | OVACARE | Ireland | Sharon O'Toole | Building a “Campaign for Impact” |
| 15. | ENGAGe TEENs | Denmark | Amalie Boeter | HPV-vaccination in Europe |
| 16. | ENGAGe TEENs | Italy | Francesco di Fino | High prevention: vaccine |
| 17. | GERMAN OVARIAN CANCER FOUNDATION | Germany | Lisa Sintermann | The Study Portal GYN |
Gynaecological cancer during pregnancy by Michael Halaška (CZ)
Fertility preservation in cancers by Frédéric Amant (BE)
Hormonal substitution in gynaecological cancer treatment by Desislava Dimitrova (DE)
ENYGO-ENGAGe survey on sexual health after gynaecological cancer - preliminary results + Workshop by Zoia Razumova (SE), Kathrin Kirchheiner (AT)
Sunday, October 30, 2022
Patient information, education in the area of digital solutions by Icó Tóth (HU)
HPV DNA Screening: an update by Murat Gultekin (TR)
Treatments (immunotherapy, PARP inhibitors) by Mansoor Raza Mirza (DK)
Long-term survival with gynaecological cancer by Hannah Woopen (DE)
Outdoor against Cancer (OAC) connects Us – OACCUs: EU Network for Young Cancer Survivors by Petra Thaller (DE)
