The presentations of the 2022 Patient Advocacy Seminar which was held in Berlin from October 28 by October 30, 2022

 

 

 

 

Friday, October 28, 2022

Oncogynaecology in war: stories of invincible Ukrainians by Margaryta Lyzogub (UA)

Video

Presentation

 

 

Workshop part 1: Aspects of healing - the rediscovery of creativity by Adak Pirmorady (DE), Susanne Diehm (DE):

Video

Presentation

 

Saturday, October 29, 2022

Patients involved in organizations - why it is important? By Eva-Maria Strömsholm (FI)

Video

Presentation

 

 

Poster presentations

No. Association Country Presents Title
1. ACTO Italy Valentina Nunziella Lombardo Quality of life in southern Italian women with gynecological cancer

Poster

2. ASSOCIATION OF CANCER PATIENTS IN FINLAND Finland Emma Andersson Experiences on the Cancer & Work project in Finland: A multi-disciplinary approach to support a timely return to working life for cancer survivors

Poster

3. Birthe Lemley Denmark Birthe Lemley Clinical Trials Project – a collaboration between ESGO ENGAGe and ENGOT to get the patient perspective into clinical trials

Poster

4. GYNECOLOGICAL CANCER GERMANY Germany Andrea Krull Get us to know

Poster

5. ESPERANZA Belgium Sonia Rademaekers 4 initiatives by Esperanza in Flanders to support patients with gynaecological cancer

Poster

6. GPU Georgia Eka Sanikidze Vaccination of girls under 18 in Georgia - achievements and challenges

Poster

7. GYNCA'S Belgium Anne De Middelaer Comfort during cancer

Poster

8. WOMEN'S CANCER ASSOCIATION Israel Vania Ben Hur Peer From a Small Group, to a Large and Warm Virtual Community, to a Broad National Activity

Poster

9. WOMEN'S CANCER ASSOCIATION Israel Vania Ben Hur Peer Expanding Social Responsibility Related to HPV Vaccines in Israel

Poster

10. ISGOPPI Ireland  Yvonne O'Meara The  key to successfully developing an online platform for those impacted by gynaecological cancer and or a  genetic mutation; early public and patient involvement and engagement

Poster

11. LOTO Italy Manuela Bignami The digital health revolution in the care pathways of ovarian cancer patients

Poster

12. MALLOW FLOWER FOUNDATION Hungary Krisztina Sallai European Cervical Cancer Prevention Week’s “Pearl of my Life” Campaign

Poster

13. OLIJF The Netherlands Arlette van der Kolk Sexual health and gynecological cancer – out of the box and in the open!

Poster

14. OVACARE Ireland Sharon O'Toole Building a “Campaign for Impact”

Poster

15. ENGAGe TEENs Denmark Amalie Boeter HPV-vaccination in Europe

Poster

16. ENGAGe TEENs Italy Francesco di Fino High prevention: vaccine

Poster

17. GERMAN OVARIAN CANCER FOUNDATION Germany Lisa Sintermann The Study Portal GYN

Poster

 

 

Gynaecological cancer during pregnancy by Michael Halaška (CZ)

Video

Presentation

 

 

Fertility preservation in cancers by Frédéric Amant (BE)

Video

Presentation

 

Hormonal substitution in gynaecological cancer treatment by Desislava Dimitrova (DE)

Video

Presentation

 

 

ENYGO-ENGAGe survey on sexual health after gynaecological cancer - preliminary results + Workshop by Zoia Razumova (SE), Kathrin Kirchheiner (AT)

Video

Presentation

 

 

 

Sunday, October 30, 2022

 

Patient information, education in the area of digital solutions by Icó Tóth (HU)

Video

Presentation

 

 

HPV DNA Screening: an update by Murat Gultekin (TR)

Video

 

Treatments (immunotherapy, PARP inhibitors) by Mansoor Raza Mirza (DK)

Video

Presentation

 

 

Long-term survival with gynaecological cancer by Hannah Woopen (DE)

Video

Presentation

 

 

Outdoor against Cancer (OAC) connects Us – OACCUs: EU Network for Young Cancer Survivors by Petra Thaller (DE)

Video

Presentation